Mayo Clinic – Technology to Help Patients with ALS Provided by Mayo Clinic in...
The device, called the NeuRx Diaphragm Pacing System (DPS), is an electronic respiratory assist system that stimulates the nerves in the muscles of the diaphragm. via Mayo Clinic – Technology to Help...
View ArticleDrug therapy for pain in amyotrophic lateral sclerosis or motor neuron...
Drug therapy for pain in amyotrophic lateral sclerosis or motor neuron disease – The Cochrane Library – Brettschneider – Wiley Online Library. Filed under: Uncategorized Tagged: ALS, Cochrane,...
View ArticleThe utilization of hospice care among patie… [J Chin Med Assoc. 2013] –...
Hospice care can save costs for patients with terminal MNDs, and family physicians play a valuable role in caring for these patients. However, respiratory and feeding problems are prevalent, yet there...
View ArticlePalliative Care: The Gift of Presence
Both nurses know that their responses and the care provided by all clinicians in the hours ahead will become lifelong memories of every member of this family. Care of the imminently dying person is an...
View ArticleStaging System in ALS Shows Potential Tracks of Disease Progression
The motor neuron disease Amyotrophic lateral sclerosis (ALS), also known as Lou Gehrig’s Disease, progresses in a stepwise, sequential pattern which can be classified into four distinct stages, report...
View ArticleCardiac sympathetic function in the patients with amyotrophic lateral...
These results suggested that some patients with ALS have sympathetic hyperactivity at the time of diagnosis. ALS patients may suffer from chronic cardiac sympathetic hyperactivity, which is associated...
View ArticleGlobal screening of MND patient’s story
Today sees the global screening of ‘I am breathing’, a documentary about a man who died from Motor Neurone Disease (MND). via Global screening of MND patient’s story. Filed under: Uncategorized Tagged:...
View ArticleCambridge Journals Online – Palliative & Supportive Care – Abstract –...
Significance of results: Even though the staff’s estimates of participants were roughly equivalent to their self-estimates, there were some differences. This result calls attention to the importance of...
View ArticleStaying just one step ahead: providing care for patients with motor neurone...
Care of people with MND requires up-to-date expertise about the disease and skilled communication abilities to manage complexity and change. Timely and focused education and specialist MND support for...
View ArticleBMC Neurology | Abstract | Weight loss, dysphagia and supplement intake in...
Weight loss is a serious issue in ALS and cannot always be attributed to dysphagia. Symptomatic treatment of weight loss (high calorie nutritional supplements and/ or PEG) should be offered more...
View ArticleWeight loss, dysphagia and supplement intake in patients with amyotrophic...
Weight loss is a serious issue in ALS and cannot always be attributed to dysphagia. Symptomatic treatment of weight loss (high calorie nutritional supplements and/ or PEG) should be offered more...
View ArticleMedical Futility Blog: Stephen Hawking – Life Support Decision
Professor Stephen Hawking has revealed how he became so ill while writing A Brief History Of Time that doctors offered to turn off his life support machine. (London Times) via Medical Futility Blog:...
View ArticleIssues for palliative medicine doctors surrounding the withdrawal of...
The withdrawal of NIV in patients with MND appears to pose considerable challenges to palliative medicine doctors; emotionally, practically and to a lesser extent ethically. Development of guidelines...
View ArticleAmyotrophic lateral sclerosis: new hope for an old disease? – Online First –...
Amyotrophic lateral sclerosis: new hope for an old disease? – Online First – Springer. Filed under: Uncategorized Tagged: ALS, research, review
View ArticleQuality of life in fatal disease: the flawed judgement of the social...
Our data suggest that caregivers and the general public significantly underestimate the QoL of ALS patients. A positive affective state can indeed be preserved in a progressive, fatal disease. via...
View ArticleVideogame-based coordinative training can improve advanced, multisystemic...
Videogame-based coordinative training can improve advanced, multisystemic early-onset ataxia – Online First – Springer. Filed under: Uncategorized Tagged: ALS, ataxia, neurodegenerative,...
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